Transparency and ongoing communication with participants in brain organoid research: Consensus of an interdisciplinary working group

Betty Cohn; Megan Doerr; Pamela Feliciano; Stephanie M. Fullerton; Saskia Hendriks; Soren Holm; Insoo Hyun; Karin Jongsma; Karen M. Meagher; M. Elizabeth Ross; Jason L. Stein; Sharon F. Terry; Katherine E. MacDuffie

doi:10.1016/j.stemcr.2025.102546

Transparency and ongoing communication with participants in brain organoid research: Consensus of an interdisciplinary working group

Betty Cohn
, Megan Doerr
, Pamela Feliciano
, Stephanie M. Fullerton
, Saskia Hendriks
, Soren Holm
, Insoo Hyun
, Karin Jongsma
, Karen M. Meagher
, M. Elizabeth Ross
, Jason L. Stein
, Sharon F. Terry
, Katherine E. MacDuffie^*

^*Corresponding author for this work

Research output: Contribution to journal › Short survey › peer-review

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Abstract

Stem cell-based models of the human brain benefit from biospecimens that can be used for a broad range of future research. But current regulations do not address the desire of research participants to remain engaged beyond initial biospecimen donation. We present practicable strategies for engaging participants while preserving scientific potential.

Original language	English
Article number	102546
Pages (from-to)	102546
Journal	Stem Cell Reports
Volume	20
Issue number	9
Early online date	26 Jun 2025
DOIs	https://doi.org/10.1016/j.stemcr.2025.102546
Publication status	Published - 9 Sept 2025

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10.1016/j.stemcr.2025.102546Licence: CC BY

PIIS221367112500150XFinal published version, 1.57 MBLicence: CC BY

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Cohn, B., Doerr, M., Feliciano, P., Fullerton, S. M., Hendriks, S., Holm, S., Hyun, I., Jongsma, K., Meagher, K. M., Ross, M. E., Stein, J. L., Terry, S. F., & MacDuffie, K. E. (2025). Transparency and ongoing communication with participants in brain organoid research: Consensus of an interdisciplinary working group. Stem Cell Reports, 20(9), 102546. Article 102546. https://doi.org/10.1016/j.stemcr.2025.102546

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abstract = "Stem cell-based models of the human brain benefit from biospecimens that can be used for a broad range of future research. But current regulations do not address the desire of research participants to remain engaged beyond initial biospecimen donation. We present practicable strategies for engaging participants while preserving scientific potential.",

author = "Betty Cohn and Megan Doerr and Pamela Feliciano and Fullerton, \{Stephanie M.\} and Saskia Hendriks and Soren Holm and Insoo Hyun and Karin Jongsma and Meagher, \{Karen M.\} and Ross, \{M. Elizabeth\} and Stein, \{Jason L.\} and Terry, \{Sharon F.\} and MacDuffie, \{Katherine E.\}",

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doi = "10.1016/j.stemcr.2025.102546",

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Cohn, B, Doerr, M, Feliciano, P, Fullerton, SM, Hendriks, S, Holm, S, Hyun, I, Jongsma, K, Meagher, KM, Ross, ME, Stein, JL, Terry, SF & MacDuffie, KE 2025, 'Transparency and ongoing communication with participants in brain organoid research: Consensus of an interdisciplinary working group', Stem Cell Reports, vol. 20, no. 9, 102546, pp. 102546. https://doi.org/10.1016/j.stemcr.2025.102546

TY - JOUR

T1 - Transparency and ongoing communication with participants in brain organoid research

T2 - Consensus of an interdisciplinary working group

AU - Cohn, Betty

AU - Doerr, Megan

AU - Feliciano, Pamela

AU - Fullerton, Stephanie M.

AU - Hendriks, Saskia

AU - Holm, Soren

AU - Hyun, Insoo

AU - Jongsma, Karin

AU - Meagher, Karen M.

AU - Ross, M. Elizabeth

AU - Stein, Jason L.

AU - Terry, Sharon F.

AU - MacDuffie, Katherine E.

PY - 2025/9/9

Y1 - 2025/9/9

N2 - Stem cell-based models of the human brain benefit from biospecimens that can be used for a broad range of future research. But current regulations do not address the desire of research participants to remain engaged beyond initial biospecimen donation. We present practicable strategies for engaging participants while preserving scientific potential.

AB - Stem cell-based models of the human brain benefit from biospecimens that can be used for a broad range of future research. But current regulations do not address the desire of research participants to remain engaged beyond initial biospecimen donation. We present practicable strategies for engaging participants while preserving scientific potential.

UR - https://www.scopus.com/pages/publications/105009320796

U2 - 10.1016/j.stemcr.2025.102546

DO - 10.1016/j.stemcr.2025.102546

M3 - Short survey

C2 - 40578353

AN - SCOPUS:105009320796

SN - 2213-6711

VL - 20

SP - 102546

JO - Stem Cell Reports

JF - Stem Cell Reports

IS - 9

M1 - 102546

ER -

Transparency and ongoing communication with participants in brain organoid research: Consensus of an interdisciplinary working group

Abstract

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