Towards a Learning Health System for Symptom Management in Hospice Care

Marieke Massa*, Marijke A. Dermois, Jennifer Caffarel, Christine M. Cramer-Van Der Welle, Dianne K.E. Boxman, Everlien de Graaf, Saskia S.C.M. Teunissen, Jurrian van der Werf

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

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Abstract

The reuse of real-world symptom monitoring data is essential in improving the quality of hospice care. A framework for achieving this is a Learning Health System, in which the development of a well-defined dataset is essential. This paper discusses the challenges in the design of a comprehensive dataset, focusing on variations in two electronic health record systems and divergent care processes.

Original languageEnglish
Article number10.3233/SHTI240347
Pages (from-to)66-67
Number of pages2
JournalStudies in Health Technology and Informatics
Volume316
DOIs
Publication statusPublished - 22 Aug 2024

Keywords

  • Hospice Care
  • Learning Health System
  • Symptom Management

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