TY - JOUR
T1 - TOPICS-MDS
T2 - Veelzijdige bron voor wetenschappelijke en maatschappelijke kennisgeneratie ten behoeve van de ouderenzorg
AU - van den Brink, Danielle
AU - Lutomski, Jennifer E.
AU - Qin, Li
AU - den Elzen, Wendy P.J.
AU - Kempen, Gertrudis I.J.M.
AU - Krabbe, Paul F.M.
AU - Steyerberg, Ewout W.
AU - Muntinga, Maaike
AU - Moll van Charante, Eric P.
AU - Bleijenberg, Nienke
AU - Olde Rikkert, Marcel G.M.
AU - Melis, René J.F.
N1 - Publisher Copyright:
© 2015, The Society Stichting Vilans.
PY - 2015/4/1
Y1 - 2015/4/1
N2 - Developed as part of the National Care for the Elderly Programme (NPO), TOPICS-MDS is a uniform, national database on the health and wellbeing of the older persons and caregivers who participated in NPO-funded projects. TOPICS-MDS Consortium has gained extensive experience in constructing a standardized questionnaire to collect relevant health care data on quality of life, health services utilization, and informal care use. A proactive approach has been undertaken not only to ensure the standardization and validation of instruments but also the infrastructure for external data requests. Efforts have been made to promote scientifically and socially responsible use of TOPICS-MDS; data has been available for secondary use since early 2014. Through this data sharing initiative, researchers can explore health issues in a broader framework which may have not been possible within individual NPO projects; this broader framework is highly relevant for influencing health policy. In this article, we provide an overview of the development and on-going progress of TOPICS-MDS. We further describe how information derived from TOPICS-MDS can be applied to facilitate future scientific innovations and public health initiatives to improve care for frail older persons and their caregivers.
AB - Developed as part of the National Care for the Elderly Programme (NPO), TOPICS-MDS is a uniform, national database on the health and wellbeing of the older persons and caregivers who participated in NPO-funded projects. TOPICS-MDS Consortium has gained extensive experience in constructing a standardized questionnaire to collect relevant health care data on quality of life, health services utilization, and informal care use. A proactive approach has been undertaken not only to ensure the standardization and validation of instruments but also the infrastructure for external data requests. Efforts have been made to promote scientifically and socially responsible use of TOPICS-MDS; data has been available for secondary use since early 2014. Through this data sharing initiative, researchers can explore health issues in a broader framework which may have not been possible within individual NPO projects; this broader framework is highly relevant for influencing health policy. In this article, we provide an overview of the development and on-going progress of TOPICS-MDS. We further describe how information derived from TOPICS-MDS can be applied to facilitate future scientific innovations and public health initiatives to improve care for frail older persons and their caregivers.
KW - Care for frail older persons
KW - Caregivers
KW - Data sharing
KW - Societal relevance
KW - Standardization
UR - http://www.scopus.com/inward/record.url?scp=84928395385&partnerID=8YFLogxK
U2 - 10.1007/s12439-015-0127-3
DO - 10.1007/s12439-015-0127-3
M3 - Article
C2 - 25877469
AN - SCOPUS:84928395385
SN - 0167-9228
VL - 46
SP - 78
EP - 91
JO - Tijdschrift voor Gerontologie en Geriatrie
JF - Tijdschrift voor Gerontologie en Geriatrie
IS - 2
ER -