@article{f1293f6cc9eb467ab2a6188a8803efe6,
title = "Thinking “ethical” when designing an international, cross-disciplinary biomedical research consortium",
abstract = "This commentary outlines challenges with identifying and implementing ethical, legal and societal considerations when initiating large-scale scientific programs and suggests best practices to ensure responsible research.",
author = "Torres-Padilla, \{Maria Elena\} and Bredenoord, \{Annelien L.\} and Jongsma, \{Karin R.\} and Astrid Lunkes and Luca Marelli and Ines Pinheiro and Giuseppe Testa",
note = "Funding Information: We thank the panellists who participated in the LifeTime Ethics Workshop on 10 July 2019 at the Helmholtz Centre in Munich, who guided and inspired the content of this commentary: Andrea Bandelli (CEO of Science Gallery International); Herv{\'e} Chneiweiss (INSERM and International Bioethics Committee of the UNESCO); Amedeo Santosuosso (Professor of Law, Science and New Technologies of the University of Pavia and Member of the World Commission on the Ethics of Scientific Knowledge and Technology of the UNESCO); Arnold Sauter (Office of Technology Assessment at the German Bundestag); Ibo van de Poel (Professor in Ethics and Technology at Delft University); Sarion Bowers (Head of Policy, Wellcome Sanger Institute); Costica Dumbrava (Communication Networks, Content \& Technology, European Commission); Angelika Eggert (Department of Pediatrics, Oncology and Hematology, Charit{\'e}, Berlin); Dory Reiling (Advisory to Law Governance and Technology, The Netherlands); and Single Cell Omics Germany for support. This project received funding from the European Union's Horizon 2020 research and innovation framework through the Coordination and Support Actions (CSA) programme under Grant Agreement No. 820431. The LifeTime initiative is co‐coordinated by Nikolaus Rajewsky (Berlin Institute for Medical Systems Biology, Max Delbr{\"u}ck Center for Molecular Medicine in the Helmholtz Association, Berlin, Germany; Charit{\'e}‐Universit{\"a}tsmedizin, 10117 Berlin, Germany; Berlin Institute of Health (BIH), Berlin, Germany) and Genevi{\`e}ve Almouzni (Institut Curie, CNRS, PSL Research University, Sorbonne Universit{\'e}, Nuclear Dynamics Unit, Equipe Labellis{\'e}e Ligue Contre le Cancer, Paris, France). Funding Information: We thank the panellists who participated in the LifeTime Ethics Workshop on 10 July 2019 at the Helmholtz Centre in Munich, who guided and inspired the content of this commentary: Andrea Bandelli (CEO of Science Gallery International); Herv? Chneiweiss (INSERM and International Bioethics Committee of the UNESCO); Amedeo Santosuosso (Professor of Law, Science and New Technologies of the University of Pavia and Member of the World Commission on the Ethics of Scientific Knowledge and Technology of the UNESCO); Arnold Sauter (Office of Technology Assessment at the German Bundestag); Ibo van de Poel (Professor in Ethics and Technology at Delft University); Sarion Bowers (Head of Policy, Wellcome Sanger Institute); Costica Dumbrava (Communication Networks, Content \& Technology, European Commission); Angelika Eggert (Department of Pediatrics, Oncology and Hematology, Charit?, Berlin); Dory Reiling (Advisory to Law Governance and Technology, The Netherlands); and Single Cell Omics Germany for support. This project received funding from the European Union's Horizon 2020 research and innovation framework through the Coordination and Support Actions (CSA) programme under Grant Agreement No. 820431. The LifeTime initiative is co-coordinated by Nikolaus Rajewsky (Berlin Institute for Medical Systems Biology, Max Delbr?ck Center for Molecular Medicine in the Helmholtz Association, Berlin, Germany; Charit?-Universit?tsmedizin, 10117 Berlin, Germany; Berlin Institute of Health (BIH), Berlin, Germany) and Genevi?ve Almouzni (Institut Curie, CNRS, PSL Research University, Sorbonne Universit?, Nuclear Dynamics Unit, Equipe Labellis?e Ligue Contre le Cancer, Paris, France).",
year = "2020",
month = oct,
day = "1",
doi = "10.15252/embj.2020105725",
language = "English",
volume = "39",
pages = "1--5",
journal = "EMBO Journal",
issn = "0261-4189",
publisher = "Springer Science and Business Media Deutschland GmbH",
number = "19",
}