TY - JOUR
T1 - Talking Cancer—Cancer Talking
T2 - A Linguistic and Thematic Analysis of Patient Narratives
AU - Kaptein, Ad A.
AU - van der Meer, Pim B.
AU - Fisher, Fleur L.
AU - van Laarhoven, Hanneke W.M.
AU - Pennebaker, James W.
AU - Vingerhoets, Ad J.J.M.
N1 - Publisher Copyright:
© The Author(s) 2024.
PY - 2024/1/1
Y1 - 2024/1/1
N2 - To explore “the lived experience” of patients with cancer through narratives, in-depth interviews with 20 patients were conducted in the patients’ homes—“at the kitchen table.” Interviews were audio-recorded, transcribed, and analyzed following the Linguistic Inquiry and Word Count (LIWC) methodology. Thematic Analysis was used to explore themes in the narratives. Scores on relevant LIWC dimensions of the 20 patients were compared with norm data for respondents without cancer. Patients with cancer scored higher on “anger” and “sadness” (psychologic processes dimension); lower on “insight,” “causes,” and “tentatives” (cognitive processes dimension); and lower on “religion.” Major themes identified from the Thematic Analysis were resilience, fatigue, social relationships, turning inward psychologically, shared decision-making, and psychological support. Narratives of patients with cancer are a source of rich data on how persons with cancer make sense of their illness, its medical management, and its psychological and social consequences. Qualitative methods of data analysis (LIWC; Thematic Analysis) are a highly valuable element in the methodology of exploring patient experience.
AB - To explore “the lived experience” of patients with cancer through narratives, in-depth interviews with 20 patients were conducted in the patients’ homes—“at the kitchen table.” Interviews were audio-recorded, transcribed, and analyzed following the Linguistic Inquiry and Word Count (LIWC) methodology. Thematic Analysis was used to explore themes in the narratives. Scores on relevant LIWC dimensions of the 20 patients were compared with norm data for respondents without cancer. Patients with cancer scored higher on “anger” and “sadness” (psychologic processes dimension); lower on “insight,” “causes,” and “tentatives” (cognitive processes dimension); and lower on “religion.” Major themes identified from the Thematic Analysis were resilience, fatigue, social relationships, turning inward psychologically, shared decision-making, and psychological support. Narratives of patients with cancer are a source of rich data on how persons with cancer make sense of their illness, its medical management, and its psychological and social consequences. Qualitative methods of data analysis (LIWC; Thematic Analysis) are a highly valuable element in the methodology of exploring patient experience.
KW - cancer
KW - health humanities
KW - illness perceptions
KW - LIWC (Linguistic Inquiry and Word Count)
KW - patient narratives
KW - thematic analysis
UR - https://www.scopus.com/pages/publications/85212825866
U2 - 10.1177/23743735241309472
DO - 10.1177/23743735241309472
M3 - Article
AN - SCOPUS:85212825866
SN - 2374-3735
VL - 11
JO - Journal of Patient Experience
JF - Journal of Patient Experience
ER -