Symptom Monitoring in Glioma Patients: Development of the Edmonton Symptom Assessment System Glioma Module

Margriet Ijzerman-Korevaar, Tom J. Snijders, Saskia C.C.M. Teunissen, Alexander De Graeff, Filip Y.F. De Vos

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background and Purpose: Symptoms in glioma patients are distinctly different from symptoms in patients with other types of cancer and have a high impact on quality of life. In this study, a stepwise approach of developing a glioma module for assessment of symptoms, based on a Dutch adapted and validated version of the Edmonton Symptom Assessment System, is described. Methods: Three phases of instrument development were conducted: A systematic literature review and a focus group interview with experts were performed (phase I) to generate relevant symptoms and construct a preliminary module (phase II). In phase III, the preliminary module was evaluated (n = 25) and pretested (n = 45) in glioma patients representing all phases of the disease. Results: Our glioma module contains 11 generic and 6 neurologic symptoms. Patients completed the glioma module in a median of 5 minutes, and 56% of the patients required some assistance to complete the instrument. Conclusion: The glioma module has initial validity and will benefit from prospective validation in a larger cohort of patients with glioma.

Original languageEnglish
Pages (from-to)381-387
Number of pages7
JournalJournal of Neuroscience Nursing
Volume50
Issue number6
DOIs
Publication statusPublished - 1 Dec 2018

Keywords

  • ESAS
  • glioma
  • PROM
  • symptom diary
  • symptom management

Fingerprint

Dive into the research topics of 'Symptom Monitoring in Glioma Patients: Development of the Edmonton Symptom Assessment System Glioma Module'. Together they form a unique fingerprint.

Cite this