TY - JOUR
T1 - Placing patient-reported outcomes at the centre of cardiovascular clinical practice
T2 - implications for quality of care and management
AU - Moons, Philip
AU - Norekvål, Tone M.
AU - Arbelo, Elena
AU - Borregaard, Britt
AU - Casadei, Barbara
AU - Cosyns, Bernard
AU - Cowie, Martin R.
AU - Fitzsimons, Donna
AU - Fraser, Alan G.
AU - Jaarsma, Tiny
AU - Kirchhof, Paulus
AU - Mauri, Josepa
AU - Mindham, Richard
AU - Sanders, Julie
AU - Schiele, Francois
AU - Torbica, Aleksandra
AU - Zwisler, Ann Dorthe
N1 - Publisher Copyright:
© 2023 The Author(s). Published by Oxford University Press on behalf of the European Society of Cardiology. All rights reserved.
PY - 2023/9/21
Y1 - 2023/9/21
N2 - Patient-reported outcomes (PROs) provide important insights into patients' own perspectives about their health and medical condition, and there is evidence that their use can lead to improvements in the quality of care and to better-informed clinical decisions. Their application in cardiovascular populations has grown over the past decades. This statement describes what PROs are, and it provides an inventory of disease-specific and domain-specific PROs that have been developed for cardiovascular populations. International standards and quality indices have been published, which can guide the selection of PROs for clinical practice and in clinical trials and research; patients as well as experts in psychometrics should be involved in choosing which are most appropriate. Collaborations are needed to define criteria for using PROs to guide regulatory decisions, and the utility of PROs for comparing and monitoring the quality of care and for allocating resources should be evaluated. New sources for recording PROs include wearable digital health devices, medical registries, and electronic health record. Advice is given for the optimal use of PROs in shared clinical decision-making in cardiovascular medicine, and concerning future directions for their wider application.
AB - Patient-reported outcomes (PROs) provide important insights into patients' own perspectives about their health and medical condition, and there is evidence that their use can lead to improvements in the quality of care and to better-informed clinical decisions. Their application in cardiovascular populations has grown over the past decades. This statement describes what PROs are, and it provides an inventory of disease-specific and domain-specific PROs that have been developed for cardiovascular populations. International standards and quality indices have been published, which can guide the selection of PROs for clinical practice and in clinical trials and research; patients as well as experts in psychometrics should be involved in choosing which are most appropriate. Collaborations are needed to define criteria for using PROs to guide regulatory decisions, and the utility of PROs for comparing and monitoring the quality of care and for allocating resources should be evaluated. New sources for recording PROs include wearable digital health devices, medical registries, and electronic health record. Advice is given for the optimal use of PROs in shared clinical decision-making in cardiovascular medicine, and concerning future directions for their wider application.
KW - Health status
KW - Measurement
KW - Patient experiences
KW - Patient-reported outcomes
KW - Quality of life
UR - http://www.scopus.com/inward/record.url?scp=85172424606&partnerID=8YFLogxK
U2 - 10.1093/eurheartj/ehad514
DO - 10.1093/eurheartj/ehad514
M3 - Article
C2 - 37606064
AN - SCOPUS:85172424606
SN - 0195-668X
VL - 44
SP - 3405
EP - 3422
JO - European heart journal
JF - European heart journal
IS - 36
ER -