Patient reported outcomes in pediatric oncology practice: suggestions for future usage by parents and pediatric oncologists

S A Schepers; V E Engelen; L Haverman; H N Caron; P M Hoogerbrugge; G J L Kaspers; R M Egeler; M A Grootenhuis

doi:10.1002/pbc.25034

Patient reported outcomes in pediatric oncology practice: suggestions for future usage by parents and pediatric oncologists

S A Schepers, V E Engelen, L Haverman, H N Caron, P M Hoogerbrugge, G J L Kaspers, R M Egeler, M A Grootenhuis

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

Several studies in adults have shown patient reported outcomes (PROs) to be effective in enhancing patient-physician communication and discussion of Health Related Quality of Life outcomes. Although less studied, positive results have been demonstrated in children. A PRO-intervention needs to be feasible in clinical practice to be successful. In the current study, 74 parents of children who successfully completed their cancer treatment and 21 pediatric oncologists (POs) evaluated a PRO-intervention and gave recommendations for future use in their practice. Most parents and POs suggested PROs to be an important part of standard care, starting during treatment, with an assessment frequency of every 3 months.

Original language	English
Pages (from-to)	1707-10
Number of pages	4
Journal	Pediatric Blood & Cancer
Volume	61
Issue number	9
DOIs	https://doi.org/10.1002/pbc.25034
Publication status	Published - Sept 2014

Keywords

Adolescent
Adult
Child
Child, Preschool
Female
Follow-Up Studies
Humans
Infant
Infant, Newborn
Male
Medical Oncology
Parents/psychology
Patient Care
Patient Outcome Assessment
Physicians/psychology
Practice Patterns, Physicians'
Prognosis
Quality of Life

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10.1002/pbc.25034

Cite this

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title = "Patient reported outcomes in pediatric oncology practice: suggestions for future usage by parents and pediatric oncologists",

abstract = "Several studies in adults have shown patient reported outcomes (PROs) to be effective in enhancing patient-physician communication and discussion of Health Related Quality of Life outcomes. Although less studied, positive results have been demonstrated in children. A PRO-intervention needs to be feasible in clinical practice to be successful. In the current study, 74 parents of children who successfully completed their cancer treatment and 21 pediatric oncologists (POs) evaluated a PRO-intervention and gave recommendations for future use in their practice. Most parents and POs suggested PROs to be an important part of standard care, starting during treatment, with an assessment frequency of every 3 months.",

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author = "Schepers, {S A} and Engelen, {V E} and L Haverman and Caron, {H N} and Hoogerbrugge, {P M} and Kaspers, {G J L} and Egeler, {R M} and Grootenhuis, {M A}",

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AU - Schepers, S A

AU - Engelen, V E

AU - Haverman, L

AU - Caron, H N

AU - Hoogerbrugge, P M

AU - Kaspers, G J L

AU - Egeler, R M

AU - Grootenhuis, M A

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KW - Adult

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KW - Child, Preschool

KW - Female

KW - Follow-Up Studies

KW - Humans

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KW - Infant, Newborn

KW - Male

KW - Medical Oncology

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KW - Patient Care

KW - Patient Outcome Assessment

KW - Physicians/psychology

KW - Practice Patterns, Physicians'

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JO - Pediatric Blood & Cancer

JF - Pediatric Blood & Cancer

IS - 9

ER -

Patient reported outcomes in pediatric oncology practice: suggestions for future usage by parents and pediatric oncologists

Abstract

Keywords

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