Abstract
Purpose of reviewThe review presents an overview of the scientific publications about patient perspectives in sarcoidosis.Recent findingsThe literature on patient perspectives in sarcoidosis is limited. Patient perspectives in sarcoidosis encompass a myriad of topics that have been addressed to some degree in the literature: patient needs and perceptions, patient-reported burden of sarcoidosis, and patient treatment priorities. Similar findings across studies were high levels of reported fatigue, a need to incorporate psychological support into the treatment plan and easy access to sarcoidosis expert centers. Furthermore, largely similar results were found across countries.SummaryThere is a growing focus in patient perspectives in terms of sarcoidosis treatment. A multidisciplinary approach including psychological support and attention to fatigue, may better reflect the needs of sarcoidosis patients. Further research on sarcoidosis patient perspectives in sarcoidosis is needed to optimize care.
Original language | English |
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Pages (from-to) | 478-483 |
Number of pages | 6 |
Journal | Current opinion in pulmonary medicine |
Volume | 25 |
Issue number | 5 |
DOIs | |
Publication status | Published - 1 Sept 2019 |
Keywords
- patient perspectives
- patient-reported outcomes
- quality of life
- sarcoidosis