Medical oncology patients' preferences with regard to health care: development of a patient-driven questionnaire

H. Wessels; A. de Graeff; K. Wijnia; H.J. Sixma; M. de Heus; M. Schipper; G.T. Woltjer; S.C.C.M. Teunissen; E.E. Voest

doi:10.1093/annonc/mdp044

Medical oncology patients' preferences with regard to health care: development of a patient-driven questionnaire

H. Wessels, A. de Graeff, K. Wijnia, H.J. Sixma, M. de Heus, M. Schipper, G.T. Woltjer, S.C.C.M. Teunissen, E.E. Voest

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

BACKGROUND: To improve quality of care for cancer patients, it is important to have an insight on the patient's view on health care and on their specific wishes, needs and preferences, without restriction and without influence of researchers and health care providers. The aim of this study was to develop a questionnaire assessing medical oncology patients' preferences for health care based on their own input.

PATIENTS AND METHODS: Items were generated using 10 focus group interviews with 51 cancer patients. A preliminary questionnaire was handed out to 681 patients of seven Dutch departments of medical oncology. Explorative factor analysis was carried out on the 386 returned questionnaires (response 57%).

RESULTS: Focus group interviews resulted in a preliminary questionnaire containing 136 items. Explorative factor analysis resulted in a definitive questionnaire containing 123 items (21 scales and eight single items). Patients rated expertise, safety, performance and attitude of physicians and nurses as the most important issues in cancer care.

CONCLUSION: This questionnaire may be used to assess preferences of cancer patients and to come to a tailored approach of health care that meets patients' wishes and needs.

Original language	English
Pages (from-to)	1708-1713
Number of pages	6
Journal	Annals of Oncology
Volume	20
Issue number	10
DOIs	https://doi.org/10.1093/annonc/mdp044
Publication status	Published - 2009

Keywords

Age Distribution
Attitude of Health Personnel
Data Interpretation, Statistical
Factor Analysis, Statistical
Female
Focus Groups
Health Care Surveys
Humans
Interviews as Topic
Male
Medical Oncology
Needs Assessment
Netherlands
Patient Satisfaction
Patient Selection
Psychometrics
Quality of Health Care
Surveys and Questionnaires

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title = "Medical oncology patients' preferences with regard to health care: development of a patient-driven questionnaire",

abstract = "BACKGROUND: To improve quality of care for cancer patients, it is important to have an insight on the patient's view on health care and on their specific wishes, needs and preferences, without restriction and without influence of researchers and health care providers. The aim of this study was to develop a questionnaire assessing medical oncology patients' preferences for health care based on their own input.PATIENTS AND METHODS: Items were generated using 10 focus group interviews with 51 cancer patients. A preliminary questionnaire was handed out to 681 patients of seven Dutch departments of medical oncology. Explorative factor analysis was carried out on the 386 returned questionnaires (response 57%).RESULTS: Focus group interviews resulted in a preliminary questionnaire containing 136 items. Explorative factor analysis resulted in a definitive questionnaire containing 123 items (21 scales and eight single items). Patients rated expertise, safety, performance and attitude of physicians and nurses as the most important issues in cancer care.CONCLUSION: This questionnaire may be used to assess preferences of cancer patients and to come to a tailored approach of health care that meets patients' wishes and needs.",

keywords = "Age Distribution, Attitude of Health Personnel, Data Interpretation, Statistical, Factor Analysis, Statistical, Female, Focus Groups, Health Care Surveys, Humans, Interviews as Topic, Male, Medical Oncology, Needs Assessment, Netherlands, Patient Satisfaction, Patient Selection, Psychometrics, Quality of Health Care, Surveys and Questionnaires",

author = "H. Wessels and {de Graeff}, A. and K. Wijnia and H.J. Sixma and {de Heus}, M. and M. Schipper and G.T. Woltjer and S.C.C.M. Teunissen and E.E. Voest",

year = "2009",

doi = "10.1093/annonc/mdp044",

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T1 - Medical oncology patients' preferences with regard to health care

T2 - development of a patient-driven questionnaire

AU - Wessels, H.

AU - de Graeff, A.

AU - Wijnia, K.

AU - Sixma, H.J.

AU - de Heus, M.

AU - Schipper, M.

AU - Woltjer, G.T.

AU - Teunissen, S.C.C.M.

AU - Voest, E.E.

PY - 2009

Y1 - 2009

N2 - BACKGROUND: To improve quality of care for cancer patients, it is important to have an insight on the patient's view on health care and on their specific wishes, needs and preferences, without restriction and without influence of researchers and health care providers. The aim of this study was to develop a questionnaire assessing medical oncology patients' preferences for health care based on their own input.PATIENTS AND METHODS: Items were generated using 10 focus group interviews with 51 cancer patients. A preliminary questionnaire was handed out to 681 patients of seven Dutch departments of medical oncology. Explorative factor analysis was carried out on the 386 returned questionnaires (response 57%).RESULTS: Focus group interviews resulted in a preliminary questionnaire containing 136 items. Explorative factor analysis resulted in a definitive questionnaire containing 123 items (21 scales and eight single items). Patients rated expertise, safety, performance and attitude of physicians and nurses as the most important issues in cancer care.CONCLUSION: This questionnaire may be used to assess preferences of cancer patients and to come to a tailored approach of health care that meets patients' wishes and needs.

AB - BACKGROUND: To improve quality of care for cancer patients, it is important to have an insight on the patient's view on health care and on their specific wishes, needs and preferences, without restriction and without influence of researchers and health care providers. The aim of this study was to develop a questionnaire assessing medical oncology patients' preferences for health care based on their own input.PATIENTS AND METHODS: Items were generated using 10 focus group interviews with 51 cancer patients. A preliminary questionnaire was handed out to 681 patients of seven Dutch departments of medical oncology. Explorative factor analysis was carried out on the 386 returned questionnaires (response 57%).RESULTS: Focus group interviews resulted in a preliminary questionnaire containing 136 items. Explorative factor analysis resulted in a definitive questionnaire containing 123 items (21 scales and eight single items). Patients rated expertise, safety, performance and attitude of physicians and nurses as the most important issues in cancer care.CONCLUSION: This questionnaire may be used to assess preferences of cancer patients and to come to a tailored approach of health care that meets patients' wishes and needs.

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KW - Factor Analysis, Statistical

KW - Female

KW - Focus Groups

KW - Health Care Surveys

KW - Humans

KW - Interviews as Topic

KW - Male

KW - Medical Oncology

KW - Needs Assessment

KW - Netherlands

KW - Patient Satisfaction

KW - Patient Selection

KW - Psychometrics

KW - Quality of Health Care

KW - Surveys and Questionnaires

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DO - 10.1093/annonc/mdp044

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SN - 0923-7534

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SP - 1708

EP - 1713

JO - Annals of Oncology

JF - Annals of Oncology

IS - 10

ER -

Medical oncology patients' preferences with regard to health care: development of a patient-driven questionnaire

Abstract

Keywords

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