International network for ALS research and care (INARC)

Juliette Foucher; Tommy M. Bunte; Vanessa Bertone; Romy L. Verschoor; Mathias Couillard; Corey Straub; Angela Genge; Caroline Ingre; Leonard H. van den Berg

doi:10.1080/21678421.2024.2362850

International network for ALS research and care (INARC)

Juliette Foucher^*, Tommy M. Bunte, Vanessa Bertone, Romy L. Verschoor, Mathias Couillard, Corey Straub, Angela Genge, Caroline Ingre, Leonard H. van den Berg

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

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Abstract

The International Network for Amyotrophic Lateral Sclerosis (ALS) Research and Care (INARC) was founded in 2022. INARC’s main goals are to offer a platform dedicated to staff members for ALS clinics and research teams who are not physicians. By nurturing experience and expertise exchanges to improve problem solving skills, the ultimate goal is to increase the standard ALS care and research. This brief report aims to describe the formation of INARC, the 2023 INARC meeting, as well as to report topics discussed, lessons learned and challenges raised by INARC members.

Original language	English
Pages (from-to)	795-796
Number of pages	2
Journal	Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
Volume	25
Issue number	7-8
Early online date	3 Jun 2024
DOIs	https://doi.org/10.1080/21678421.2024.2362850
Publication status	Published - Nov 2024

Keywords

Amyotrophic lateral sclerosis
cooperation
international
network
report

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10.1080/21678421.2024.2362850Licence: CC BY

International network for ALS research and care INARC Final published version, 691 KBLicence: CC BY

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title = "International network for ALS research and care (INARC)",

abstract = "The International Network for Amyotrophic Lateral Sclerosis (ALS) Research and Care (INARC) was founded in 2022. INARC{\textquoteright}s main goals are to offer a platform dedicated to staff members for ALS clinics and research teams who are not physicians. By nurturing experience and expertise exchanges to improve problem solving skills, the ultimate goal is to increase the standard ALS care and research. This brief report aims to describe the formation of INARC, the 2023 INARC meeting, as well as to report topics discussed, lessons learned and challenges raised by INARC members.",

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language = "English",

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AU - Foucher, Juliette

AU - Bunte, Tommy M.

AU - Bertone, Vanessa

AU - Verschoor, Romy L.

AU - Couillard, Mathias

AU - Straub, Corey

AU - Genge, Angela

AU - Ingre, Caroline

AU - van den Berg, Leonard H.

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AB - The International Network for Amyotrophic Lateral Sclerosis (ALS) Research and Care (INARC) was founded in 2022. INARC’s main goals are to offer a platform dedicated to staff members for ALS clinics and research teams who are not physicians. By nurturing experience and expertise exchanges to improve problem solving skills, the ultimate goal is to increase the standard ALS care and research. This brief report aims to describe the formation of INARC, the 2023 INARC meeting, as well as to report topics discussed, lessons learned and challenges raised by INARC members.

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KW - cooperation

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KW - network

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International network for ALS research and care (INARC)

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