TY - JOUR
T1 - Identifying and overcoming barriers to referral in advanced heart failure. A scientific statement of the Heart Failure Association (HFA) of the ESC
AU - Baudry, Guillaume
AU - Crespo-Leiro, Maria Generosa
AU - Delmas, Clément
AU - Guidetti, Federica
AU - Bravo, Marta Jimenez-Blanco
AU - Valente, Federica
AU - Cikes, Maja
AU - Girerd, Nicolas
AU - Gustafsson, Finn
AU - Savarese, Gianluigi
AU - van Laake, Linda W
AU - Hill, Loreena
AU - Skibelund, Anne Kathrine
AU - Zuckermann, Andreas
AU - Metra, Marco
AU - Damman, Kevin
N1 - Publisher Copyright:
© 2025 The Author(s). European Journal of Heart Failure published by John Wiley & Sons Ltd on behalf of European Society of Cardiology.
PY - 2025/12
Y1 - 2025/12
N2 - The identification of patients with advanced heart failure (HF) remains challenging, often leading to delayed referrals and suboptimal use of advanced therapies such as long-term mechanical circulatory support (MCS) or heart transplantation (HT). This delay contributes to worse outcomes and missed opportunities for timely intervention. Many eligible patients are not recognized early enough in their clinical trajectory, either due to the complexity of the condition, overlapping HF phenotypes, or limited awareness of referral criteria among non-specialist clinicians. In this context, the aim of this scientific statement from the Heart Failure Association (HFA) of the ESC is to systematically identify and address the multifaceted barriers that hinder early recognition and referral for advanced HF care. These barriers span across different stakeholders-patients, caregivers, referring physicians, HF specialists, the academic community, and health authorities. The document proposes practical, stakeholder-specific solutions to improve awareness, standardize referral criteria, integrate digital decision-support tools, and structure care networks. Ultimately, the goal is to enable earlier access to specialized evaluation, ensure equitable use of HT and MCS when appropriate, and improve both survival and quality of life for patients living with advanced HF.
AB - The identification of patients with advanced heart failure (HF) remains challenging, often leading to delayed referrals and suboptimal use of advanced therapies such as long-term mechanical circulatory support (MCS) or heart transplantation (HT). This delay contributes to worse outcomes and missed opportunities for timely intervention. Many eligible patients are not recognized early enough in their clinical trajectory, either due to the complexity of the condition, overlapping HF phenotypes, or limited awareness of referral criteria among non-specialist clinicians. In this context, the aim of this scientific statement from the Heart Failure Association (HFA) of the ESC is to systematically identify and address the multifaceted barriers that hinder early recognition and referral for advanced HF care. These barriers span across different stakeholders-patients, caregivers, referring physicians, HF specialists, the academic community, and health authorities. The document proposes practical, stakeholder-specific solutions to improve awareness, standardize referral criteria, integrate digital decision-support tools, and structure care networks. Ultimately, the goal is to enable earlier access to specialized evaluation, ensure equitable use of HT and MCS when appropriate, and improve both survival and quality of life for patients living with advanced HF.
KW - Advanced heart failure
KW - Heart transplantation
KW - Mechanical circulatory support
KW - Quality of care centres
KW - Referral
UR - https://www.scopus.com/pages/publications/105013471484
U2 - 10.1002/ejhf.70003
DO - 10.1002/ejhf.70003
M3 - Review article
C2 - 40819957
SN - 1388-9842
VL - 27
SP - 3312
EP - 3325
JO - European Journal of Heart Failure
JF - European Journal of Heart Failure
IS - 12
ER -