Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue

Carla Vlooswijk; Silvie H M Janssen; Lonneke V van de Poll-Franse; Rhodé Bijlsma; Suzanne E J Kaal; J Martijn Kerst; Jacqueline M Tromp; Monique E M M Bos; Roy I Lalisang; Janine Nuver; Mathilde C M Kouwenhoven; Winette T A van der Graaf; Olga Husson

doi:10.1186/s41687-023-00629-0

Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue

Carla Vlooswijk
, Silvie H M Janssen
, Lonneke V van de Poll-Franse
, Rhodé Bijlsma
, Suzanne E J Kaal
, J Martijn Kerst
, Jacqueline M Tromp
, Monique E M M Bos
, Roy I Lalisang
, Janine Nuver
, Mathilde C M Kouwenhoven
, Winette T A van der Graaf
, Olga Husson

Research output: Contribution to journal › Article › Academic › peer-review

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Abstract

The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was worse compared to the normative population before and during the COVID-19 pandemic, the scores of AYACS improved over time in contrast to the normative population. Presumably, AYACS are used to adjusting their lives to stressful life events. Furthermore, the lockdown may have been beneficial for AYACS who face difficulties fully participating in society due to the impact of cancer. AYACS who encounter HRQoL issues could benefit from support interventions to empower them and build resilience.

Original language	English
Article number	93
Journal	Journal of patient-reported outcomes
Volume	7
Issue number	1
DOIs	https://doi.org/10.1186/s41687-023-00629-0
Publication status	Published - 13 Sept 2023

Keywords

Adolescents and young adults
COVID-19
Cancer
Health-related quality of life
Social functioning
Survivorship

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Vlooswijk, C., Janssen, S. H. M., van de Poll-Franse, L. V., Bijlsma, R., Kaal, S. E. J., Kerst, J. M., Tromp, J. M., Bos, M. E. M. M., Lalisang, R. I., Nuver, J., Kouwenhoven, M. C. M., van der Graaf, W. T. A., & Husson, O. (2023). Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue. Journal of patient-reported outcomes, 7(1), Article 93. https://doi.org/10.1186/s41687-023-00629-0

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title = "Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue",

abstract = "The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was worse compared to the normative population before and during the COVID-19 pandemic, the scores of AYACS improved over time in contrast to the normative population. Presumably, AYACS are used to adjusting their lives to stressful life events. Furthermore, the lockdown may have been beneficial for AYACS who face difficulties fully participating in society due to the impact of cancer. AYACS who encounter HRQoL issues could benefit from support interventions to empower them and build resilience.",

keywords = "Adolescents and young adults, COVID-19, Cancer, Health-related quality of life, Social functioning, Survivorship",

author = "Carla Vlooswijk and Janssen, \{Silvie H M\} and \{van de Poll-Franse\}, \{Lonneke V\} and Rhod{\'e} Bijlsma and Kaal, \{Suzanne E J\} and Kerst, \{J Martijn\} and Tromp, \{Jacqueline M\} and Bos, \{Monique E M M\} and Lalisang, \{Roy I\} and Janine Nuver and Kouwenhoven, \{Mathilde C M\} and \{van der Graaf\}, \{Winette T A\} and Olga Husson",

note = "Publisher Copyright: {\textcopyright} 2023, International Society for Quality of Life Research (ISOQOL).",

year = "2023",

month = sep,

day = "13",

doi = "10.1186/s41687-023-00629-0",

language = "English",

volume = "7",

journal = "Journal of patient-reported outcomes",

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Vlooswijk, C, Janssen, SHM, van de Poll-Franse, LV, Bijlsma, R, Kaal, SEJ, Kerst, JM, Tromp, JM, Bos, MEMM, Lalisang, RI, Nuver, J, Kouwenhoven, MCM, van der Graaf, WTA & Husson, O 2023, 'Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue', Journal of patient-reported outcomes, vol. 7, no. 1, 93. https://doi.org/10.1186/s41687-023-00629-0

Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue. / Vlooswijk, Carla; Janssen, Silvie H M; van de Poll-Franse, Lonneke V et al.
In: Journal of patient-reported outcomes, Vol. 7, No. 1, 93, 13.09.2023.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic

T2 - longitudinal improvements on social functioning and fatigue

AU - Vlooswijk, Carla

AU - Janssen, Silvie H M

AU - van de Poll-Franse, Lonneke V

AU - Bijlsma, Rhodé

AU - Kaal, Suzanne E J

AU - Kerst, J Martijn

AU - Tromp, Jacqueline M

AU - Bos, Monique E M M

AU - Lalisang, Roy I

AU - Nuver, Janine

AU - Kouwenhoven, Mathilde C M

AU - van der Graaf, Winette T A

AU - Husson, Olga

PY - 2023/9/13

Y1 - 2023/9/13

N2 - The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was worse compared to the normative population before and during the COVID-19 pandemic, the scores of AYACS improved over time in contrast to the normative population. Presumably, AYACS are used to adjusting their lives to stressful life events. Furthermore, the lockdown may have been beneficial for AYACS who face difficulties fully participating in society due to the impact of cancer. AYACS who encounter HRQoL issues could benefit from support interventions to empower them and build resilience.

AB - The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was worse compared to the normative population before and during the COVID-19 pandemic, the scores of AYACS improved over time in contrast to the normative population. Presumably, AYACS are used to adjusting their lives to stressful life events. Furthermore, the lockdown may have been beneficial for AYACS who face difficulties fully participating in society due to the impact of cancer. AYACS who encounter HRQoL issues could benefit from support interventions to empower them and build resilience.

KW - Adolescents and young adults

KW - COVID-19

KW - Cancer

KW - Health-related quality of life

KW - Social functioning

KW - Survivorship

UR - https://www.scopus.com/pages/publications/85171119773

U2 - 10.1186/s41687-023-00629-0

DO - 10.1186/s41687-023-00629-0

M3 - Article

C2 - 37702884

SN - 2509-8020

VL - 7

JO - Journal of patient-reported outcomes

JF - Journal of patient-reported outcomes

IS - 1

M1 - 93

ER -

Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue

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Keywords

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