TY - JOUR
T1 - Health outcomes for children with neurodisability
T2 - what do professionals regard as primary targets?
AU - Janssens, Astrid
AU - Williams, Jane
AU - Tomlinson, Richard
AU - Logan, Stuart
AU - Morris, Christopher
N1 - Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.
PY - 2014/10
Y1 - 2014/10
N2 - AIM: To identify what aspects of health clinicians target when working with children with neurodisability, and which might be appropriate to assess the performance of health services.METHOD: Health professionals were recruited through child development teams and professional societies in England. Professionals participated in four rounds of an online Delphi survey. Open questions were used to elicit aspects of health; these were coded using the WHO International Classification of Functioning, Disability and Health for Children and Youth. Then, participants were asked to rate their agreement with statements to prioritise outcomes identified.RESULTS: Responses to all four rounds were, respectively: 233/276 (84.4%), 232/286 (81.1%), 227/285 (79.6%) and 191/284 (67.3%). The key outcome domains identified were: mental health, confidence/emotional stability, anxiety/attention, sleep, pain, toileting, movement ability, manual ability, acquiring skills, communication, mobility, self-care, recreation and leisure. Participants rated both functioning and well-being in these aspects of health as equally important.INTERPRETATION: This Delphi survey identified nine key domains that provide a professional perspective on a core set of outcomes for evaluating services for children and young people with neurodisability.
AB - AIM: To identify what aspects of health clinicians target when working with children with neurodisability, and which might be appropriate to assess the performance of health services.METHOD: Health professionals were recruited through child development teams and professional societies in England. Professionals participated in four rounds of an online Delphi survey. Open questions were used to elicit aspects of health; these were coded using the WHO International Classification of Functioning, Disability and Health for Children and Youth. Then, participants were asked to rate their agreement with statements to prioritise outcomes identified.RESULTS: Responses to all four rounds were, respectively: 233/276 (84.4%), 232/286 (81.1%), 227/285 (79.6%) and 191/284 (67.3%). The key outcome domains identified were: mental health, confidence/emotional stability, anxiety/attention, sleep, pain, toileting, movement ability, manual ability, acquiring skills, communication, mobility, self-care, recreation and leisure. Participants rated both functioning and well-being in these aspects of health as equally important.INTERPRETATION: This Delphi survey identified nine key domains that provide a professional perspective on a core set of outcomes for evaluating services for children and young people with neurodisability.
KW - Adolescent
KW - Attitude of Health Personnel
KW - Brain Diseases/complications
KW - Child
KW - Child Health Services/methods
KW - Child, Preschool
KW - Delphi Technique
KW - Disabled Persons/psychology
KW - England
KW - Female
KW - Health Personnel/psychology
KW - Humans
KW - Male
KW - Surveys and Questionnaires
U2 - 10.1136/archdischild-2013-305803
DO - 10.1136/archdischild-2013-305803
M3 - Article
C2 - 24854564
SN - 0003-9888
VL - 99
SP - 927
EP - 932
JO - Archives of Disease in Childhood
JF - Archives of Disease in Childhood
IS - 10
ER -