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Growth Hormone Withdrawal in Mid-Puberty: No Impact on Near Adult Height in Adolescents with Transient Idiopathic GHD

  • Joeri Vliegenthart*
  • , Jan M Wit
  • , Boudewijn Bakker
  • , Annemieke M Boot
  • , Christiaan de Bruin
  • , Martijn J J Finken
  • , Josine C van der Heyden
  • , Anita C S Hokken-Koelega
  • , Hetty J van der Kamp
  • , Edgar G van Mil
  • , Theo C J Sas
  • , Dina A Schott
  • , Petra van Setten
  • , Saartje Straetemans
  • , Vera van Tellingen
  • , Robbert N H Touwslager
  • , A S Paul van Trotsenburg
  • , Paul G Voorhoeve
  • , Edmond H H M Rings
  • , Erica L T van den Akker
  • Danielle C M van der Kaay
*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Context: In children with idiopathic isolated growth hormone deficiency (IIGHD), GH secretion often normalizes by near adult height (NAH). Whether recombinant human GH (rhGH) treatment can be safely discontinued earlier remains unclear. Objective: This work aimed to investigate if withdrawing rhGH treatment from mid-puberty onward had no negative effect on attained NAH in adolescents who, after retesting, were no longer GH deficient. Methods: A prospective multicenter patient preference study was conducted at pediatric endocrinology departments in multiple centers (2017-2024) with follow-up until NAH (SEENEZ GH Study). Participants included 127 adolescents (95 male, 75%) with childhood IIGHD (GH peak 1.7-10 µg/L) who tested GH sufficient (GH peak >6.7 µg/L) at mid-puberty. Forty-four continued rhGH (GHcont), 83 discontinued (GHstop). A total of 99% of patients completed the study. Intervention included rhGH treatment continuation vs discontinuation from mid-puberty until NAH. The primary outcome measure was NAH-SDS minus target height (TH)-SDS. The secondary outcome was NAH-SDS, total pubertal growth (TPG), and predicted vs attained height gain. Results: Mean (SD) NAH-SDS minus TH-SDS was −0.17 (0.60) in the GHcont and −0.18 (0.62) in the GHstop group (P = .96). Mean NAH-SDS was −0.91 (0.76) (GHcont) vs −0.78 (0.76) (GHstop) (P = .35). Mean (SD) TPG (from start of puberty) in males was 27.5 cm (7.0; GHcont) vs 25.9 cm (6.2; GHstop) (P = .25) and in females 20.5 cm (5.7; GHcont) vs 20.9 cm (7.6; GHstop) (P = .90). Predicted vs attained height gain based on the prediction model did not differ between groups. Conclusions: In adolescents with transient IIGHD, rhGH treatment can be stopped at mid-puberty. These findings support reducing rhGH treatment duration, lowering patient burden and health-care costs.

Original languageEnglish
Pages (from-to)1319-1328
Number of pages10
JournalThe Journal of clinical endocrinology and metabolism
Volume111
Issue number5
Early online date15 Nov 2025
DOIs
Publication statusPublished - May 2026

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