TY - JOUR
T1 - Getting to Know Your Patient
T2 - Content Analysis of Patients' Answers to a Questionnaire for Promoting Person-Centered Care
AU - Bergers, Juno Hk
AU - Wessels-Wynia, Hester
AU - Seute, Tatjana
AU - Janssens, Astrid
AU - van Delden, Johannes Jm
N1 - Publisher Copyright:
© Juno HK Bergers, Hester Wessels-Wynia, Tatjana Seute, Astrid Janssens, Johannes JM van Delden.
PY - 2024/1
Y1 - 2024/1
N2 - BACKGROUND: Person-centered care (PCC) encourages patients to actively participate in health care, thus facilitating care that fits the life of the patient. Therefore, health care professionals (HCPs) need to know the patient. As part of a broad policy for improving PCC, a digital questionnaire ("We would like to know you") consisting of 5 questions has previously been developed to help HCPs to get to know the patient with the help of patient and staff involvement.OBJECTIVE: The purpose of this study was to provide insight into the content and aims of the questionnaire to understand its potential and usability.METHODS: We conducted a qualitative, retrospective content analysis of patients' answers using NVivo Pro (QSR International). The questionnaire was used in the outpatient neuro-oncology department of a Dutch academic hospital.RESULTS: Of 374 invited patients, 78 (20.9%) completed the questionnaire. We selected a sample of 42 (54%) of the 78 patients. Patients used a median of 16 (IQR 7-27) words per question, and most answers were easily interpretable. When asked about important activities, social activities, sports, or maintaining a normal life were most frequently mentioned. Patients wrote about fear of the disease, its possible influence on life, or fear of the future in general. Patients wanted HCPs to know about their care and communication preferences or shared personal information. They formulated expectations about effective treatment, communication, and the care process.CONCLUSIONS: The questionnaire seems usable because patients provide interpretable answers that take little time to read, which HCPs can use to personalize care. Our study shows the potential of the questionnaire to help deliver PCC.
AB - BACKGROUND: Person-centered care (PCC) encourages patients to actively participate in health care, thus facilitating care that fits the life of the patient. Therefore, health care professionals (HCPs) need to know the patient. As part of a broad policy for improving PCC, a digital questionnaire ("We would like to know you") consisting of 5 questions has previously been developed to help HCPs to get to know the patient with the help of patient and staff involvement.OBJECTIVE: The purpose of this study was to provide insight into the content and aims of the questionnaire to understand its potential and usability.METHODS: We conducted a qualitative, retrospective content analysis of patients' answers using NVivo Pro (QSR International). The questionnaire was used in the outpatient neuro-oncology department of a Dutch academic hospital.RESULTS: Of 374 invited patients, 78 (20.9%) completed the questionnaire. We selected a sample of 42 (54%) of the 78 patients. Patients used a median of 16 (IQR 7-27) words per question, and most answers were easily interpretable. When asked about important activities, social activities, sports, or maintaining a normal life were most frequently mentioned. Patients wrote about fear of the disease, its possible influence on life, or fear of the future in general. Patients wanted HCPs to know about their care and communication preferences or shared personal information. They formulated expectations about effective treatment, communication, and the care process.CONCLUSIONS: The questionnaire seems usable because patients provide interpretable answers that take little time to read, which HCPs can use to personalize care. Our study shows the potential of the questionnaire to help deliver PCC.
KW - patient engagement
KW - person-centered care
KW - positive health
KW - shared decision-making
UR - http://www.scopus.com/inward/record.url?scp=85187523103&partnerID=8YFLogxK
U2 - 10.2196/48573
DO - 10.2196/48573
M3 - Article
C2 - 38437017
SN - 2152-7202
VL - 16
JO - Journal of participatory medicine
JF - Journal of participatory medicine
IS - 1
M1 - e48573
ER -