TY - JOUR
T1 - Frequently asked questions and answers on Visually-Provoked (Photosensitive) epilepsy
AU - Kasteleijn-Nolst Trenité, Dorothée
AU - Acharya, Jayant
AU - Baumer, Fiona Mitchell
AU - Beran, Roy
AU - Craiu, Dana
AU - French, Jaqueline
AU - Parisi, Pasquale
AU - Solodar, Jessica
AU - Szaflarski, Jerzy P.
AU - Takahashi, Yukitoshi
AU - Thio, Liu Lin
AU - Tolchin, Ben
AU - Wilkins, Arnold
AU - Fisher, Robert S.
N1 - Publisher Copyright:
© 2025 The Authors
PY - 2025/6
Y1 - 2025/6
N2 - Clinical experts associated with national epilepsy-related societies, led by the Epilepsy Foundation, collected, collated and answered “Frequently asked questions (FAQ)” of broad interest pertaining to visually-provoked seizures. Questions emerged from people with epilepsy, caretakers and healthcare professionals from different countries around the world. Focus is on practical implications of visually-provoked seizures. The top 5 most frequently asked questions were. 1. How does a doctor make a diagnosis of visually-provoked seizures? 2. What can I do in general to prevent visually-provoked seizures? 3. Will I need antiseizure medications for my visually-provoked seizures?” 4. Will I outgrow visually-provoked seizures? How will I know if I've outgrown them? 5. How do I enable safety features to block content that could trigger seizures on social media, websites, phones, laptops and tablets?Answers were based on scientific evidence, where such information was available [1] and expert opinion when formal evidence was insufficient. Key answers included distinction of photoparoxysmal EEG findings versus light-provoked seizures. Typical provocation is by flashes at 10–25 per second or certain moving patterns. There is a genetic risk, which is outgrown in about half. Covering one or both eyes can prevent a light-provoked seizure. TV, videogames, virtual reality and 3D images are not in themselves provocative, but their content can be. Topics covered included: 1. Photosensitive epilepsy diagnosis; 2. Preventing visually-provoked seizures; 3. Do treatments help; 4. Life and behavioral decisions; 5. School; 6. Multi-media; 7. Children and youth.
AB - Clinical experts associated with national epilepsy-related societies, led by the Epilepsy Foundation, collected, collated and answered “Frequently asked questions (FAQ)” of broad interest pertaining to visually-provoked seizures. Questions emerged from people with epilepsy, caretakers and healthcare professionals from different countries around the world. Focus is on practical implications of visually-provoked seizures. The top 5 most frequently asked questions were. 1. How does a doctor make a diagnosis of visually-provoked seizures? 2. What can I do in general to prevent visually-provoked seizures? 3. Will I need antiseizure medications for my visually-provoked seizures?” 4. Will I outgrow visually-provoked seizures? How will I know if I've outgrown them? 5. How do I enable safety features to block content that could trigger seizures on social media, websites, phones, laptops and tablets?Answers were based on scientific evidence, where such information was available [1] and expert opinion when formal evidence was insufficient. Key answers included distinction of photoparoxysmal EEG findings versus light-provoked seizures. Typical provocation is by flashes at 10–25 per second or certain moving patterns. There is a genetic risk, which is outgrown in about half. Covering one or both eyes can prevent a light-provoked seizure. TV, videogames, virtual reality and 3D images are not in themselves provocative, but their content can be. Topics covered included: 1. Photosensitive epilepsy diagnosis; 2. Preventing visually-provoked seizures; 3. Do treatments help; 4. Life and behavioral decisions; 5. School; 6. Multi-media; 7. Children and youth.
KW - Epilepsy
KW - Pattern-sensitive seizures
KW - Photosensitive seizures
KW - Reflex Epilepsy
KW - Video game seizures
UR - http://www.scopus.com/inward/record.url?scp=105001266957&partnerID=8YFLogxK
U2 - 10.1016/j.ebr.2025.100753
DO - 10.1016/j.ebr.2025.100753
M3 - Review article
AN - SCOPUS:105001266957
SN - 2589-9864
VL - 30
JO - Epilepsy and Behavior Reports
JF - Epilepsy and Behavior Reports
M1 - 100753
ER -