First international workshop on rehabilitation management and clinical outcome measures for spinal muscular atrophy

Jacqueline Montes, Sally Dunaway Young, Elena Mazzone, Marion Main, Bart Bartels, Matthew Civitello, Giorgia Coratti, Sally Dunaway Young, Tina Duong, Timothy Estilow, Richard Gee, Allan M. Glanzman, Janis Kitsuwa-Lowe, Marion Main, Anna Mayhew, Elena Mazzone, Elizabeth Mirek, Jacqueline Montes, Robert Muni Lofra, Shree PandyaAmy Pasternak, Danielle Ramsey, Rachel Salazar, Jenna Turner, Julie Wells,

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Twenty-one physical and occupational therapists from the USA and Europe (Italy, United Kingdom and Netherlands) met in Dallas, Texas USA on October 16 and 17, 2016. The purpose of this meeting was to review the current landscape of rehabilitation management and clinical outcome measures for spinal muscular atrophy (SMA). The workshop was organized into three sessions entitled: (1) Rehabilitation and Musculoskeletal Considerations; (2) SMA Clinical Outcome Measures; and (3) Rehabilitation Devices for Evaluation and Treatment. A closing session was included to summarize the meeting topics, next steps and proposed action items.
Original languageEnglish
Pages (from-to)964-969
Number of pages6
JournalNeuromuscular Disorders
Volume27
Issue number10
DOIs
Publication statusPublished - 1 Oct 2017

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