Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review

Jacoba Huizenga*, Aukelien Scheffelaar, Agnetha Fruijtier, Jean Pierre Wilken, Nienke Bleijenberg, Tine Van Regenmortel

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

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Abstract

Increasing attention has been paid to the ‘voice’ of people living with mild cognitive impairment (MCI) or dementia, but there is a lack of clarity about how everyday life is perceived from this insider’s perspective. This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MCI and dementia living at home. A scoping review of qualitative studies, guided by the Joanna Briggs Institute Reviewers Manual, was conducted. Eight databases were searched, resulting in 6345 records, of which 58 papers published between 2011 and 2021 were included. Analysis was carried out by descriptive content analysis. Findings were categorized into seven spheres of everyday life: experiences related to the condition, self, relationships, activities, environment, health and social care and public opinions. The results show many disruptions and losses in everyday life and how people try to accommodate these changes. In all areas of everyday life, people show a deep desire to have reciprocal relationships, stay engaged through participation in activities and have a sense of belonging in the community. However, more research is needed on the factors that promote and impede the sense of reciprocity and belonging.

Original languageEnglish
Article number10828
JournalInternational journal of environmental research and public health
Volume19
Issue number17
DOIs
Publication statusPublished - Sept 2022

Keywords

  • citizenship
  • dementia
  • everyday life
  • lived experience
  • living in the community
  • mild cognitive impairment

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