European principles of care for women and girls with inherited bleeding disorders

Karin van Galen, Michelle Lavin, Naja Skouw-Rasmussen, Kathelijn Fischer, Declan Noone, Debra Pollard, Eveline Mauser-Bunschoten, Kate Khair, Keith Gomez, Ellen van Loon, Catherine N Bagot, Petra Elfvinge, Roseline d'Oiron, Rezan Abdul-Kadir,

Research output: Contribution to journalArticleAcademicpeer-review

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Abstract

INTRODUCTION: Despite increasing awareness of issues faced by women and girls with inherited BDs (WGBD), standards of care are lacking, with disparities in diagnosis and treatment for WGBD across Europe. We aimed to develop practical principles of care (PoC) to promote standardization of care for WGBD within European Haemophilia Treatment and Comprehensive Care Centres (HTC/CCCs).

METHODS: The co-creation process, supported by the European Association for Haemophilia and Allied Disorders, consisted of four multidisciplinary meetings with health care providers (HCPs) experienced in WGBD care, and European Haemophilia Consortium representatives, combined with broad patient and HCP consultations in the European haemophilia community. Relevant medical societies outside Europe were contacted for confirmation.

RESULTS: We developed ten PoC for WGBD, stressing the importance and benefits of a centralized, multidisciplinary, comprehensive, family-centred approach to support and manage WGBD during all life stages. These PoC emphasise the right to equitable access and quality of care for all people with BDs, irrespective of gender. Multiple medical societies outside Europe also confirmed their support for endorsement.

CONCLUSIONS: Ten PoC for WGBD evolved from an iterative process among stakeholders, supported by relevant medical societies worldwide. These PoC can serve as a benchmark for diagnosis and comprehensive multidisciplinary management of WGBD, and improve awareness of their unique challenges. They offer a framework to guide HTC/CCCs in providing equitable care for all WGBD, both in their own services and in other healthcare settings. Implementation of these principles aims to positively impact the health, wellbeing and quality of life for WGBD.

Original languageEnglish
Pages (from-to)837-847
Number of pages11
JournalHaemophilia
Volume27
Issue number5
DOIs
Publication statusPublished - Sept 2021

Keywords

  • bleeding disorder
  • heavy menstrual bleeding
  • postpartum haemorrhage and reproduction
  • pregnancy
  • principles of care
  • women

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