Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership

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Abstract

OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda's with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda.

KEY ARGUMENTS: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion.

CONCLUSION: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research.

Original languageEnglish
Article numbere059006
JournalBMJ Open
Volume12
Issue number5
DOIs
Publication statusPublished - 24 May 2022

Keywords

  • ETHICS (see Medical Ethics)
  • Health policy
  • MEDICAL ETHICS
  • Paediatric rheumatology
  • Quality in health care

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