TY - JOUR
T1 - Establishing a multistakeholder research agenda
T2 - lessons learned from a James Lind Alliance Partnership
AU - Jongsma, Karin Rolanda
AU - Milota, Megan M
N1 - Funding Information:
PGO support funded part of this study
Publisher Copyright:
© 2022 BMJ Publishing Group. All rights reserved.
PY - 2022/5/24
Y1 - 2022/5/24
N2 - OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda's with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda.KEY ARGUMENTS: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion.CONCLUSION: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research.
AB - OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda's with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda.KEY ARGUMENTS: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion.CONCLUSION: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research.
KW - ETHICS (see Medical Ethics)
KW - Health policy
KW - MEDICAL ETHICS
KW - Paediatric rheumatology
KW - Quality in health care
UR - http://www.scopus.com/inward/record.url?scp=85130981880&partnerID=8YFLogxK
U2 - 10.1136/bmjopen-2021-059006
DO - 10.1136/bmjopen-2021-059006
M3 - Review article
C2 - 35613776
SN - 2044-6055
VL - 12
JO - BMJ Open
JF - BMJ Open
IS - 5
M1 - e059006
ER -