TY - JOUR
T1 - Environmental factors associated with participation and its related concepts among children and youth with cerebral palsy
T2 - a rapid review
AU - van der Kemp, Jet
AU - Ketelaar, Marjolijn
AU - Gorter, Jan Willem
N1 - Funding Information:
This study was performed as part of a Medical Research Training of the first author (JvdK, University Medical Centre Utrecht, The Netherlands) at CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Canada (2019). We thank Andrea McLellan, librarian at McMaster University, who provided support and expertise in conducting the literature search. Dr. Gorter holds the Scotiabank Chair in Child Health Research.
Publisher Copyright:
© 2021 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2022/5
Y1 - 2022/5
N2 - PURPOSE: To provide an overview of environmental factors associated with participation and participation-related constructs in children and youth with cerebral palsy (CP).METHODS: A rapid review following the principles from scoping methodology was performed with a literature search in September 2019. The CINAHL, Embase, Ovid MEDLINE and PsychINFO databases were searched to identify original articles which addressed participation in children and youth (aged 0-18) with CP.RESULTS: In total, 9511 unique articles were identified, of which 34 met all inclusion criteria. Many different measures for environmental factors were used. Most common environmental factors associated with participation (i.e., attendance and involvement) were family ecology, type of school, and parental stress. Regarding participation-related constructs (activity competence, sense of self and preferences), most common factors were parental stress and the physical environment.CONCLUSIONS: While environmental factors are found to be associated with participation attendance and activity competence in children with CP, there is a lack of research of environmental factors in relation to both participation involvement and other participation-related constructs. To increase impact in clinical practice, future research should involve structured assessments of the environment and focus more on modifiable factors, to help service providers develop treatment paradigms needed for meaningful participation outcomes.IMPLICATIONS FOR REHABILITATIONFamily ecology, type of school, and parental stress were the most common factors associated with participation.Future research should focus on modifiable factors associated with participation outcomes.Modifiable environmental factors associated with participation included parental stress, family activity and type of school.In clinical practice, environmental factors are to be assessed in a more systematic way in relation to current or future participation restrictions.
AB - PURPOSE: To provide an overview of environmental factors associated with participation and participation-related constructs in children and youth with cerebral palsy (CP).METHODS: A rapid review following the principles from scoping methodology was performed with a literature search in September 2019. The CINAHL, Embase, Ovid MEDLINE and PsychINFO databases were searched to identify original articles which addressed participation in children and youth (aged 0-18) with CP.RESULTS: In total, 9511 unique articles were identified, of which 34 met all inclusion criteria. Many different measures for environmental factors were used. Most common environmental factors associated with participation (i.e., attendance and involvement) were family ecology, type of school, and parental stress. Regarding participation-related constructs (activity competence, sense of self and preferences), most common factors were parental stress and the physical environment.CONCLUSIONS: While environmental factors are found to be associated with participation attendance and activity competence in children with CP, there is a lack of research of environmental factors in relation to both participation involvement and other participation-related constructs. To increase impact in clinical practice, future research should involve structured assessments of the environment and focus more on modifiable factors, to help service providers develop treatment paradigms needed for meaningful participation outcomes.IMPLICATIONS FOR REHABILITATIONFamily ecology, type of school, and parental stress were the most common factors associated with participation.Future research should focus on modifiable factors associated with participation outcomes.Modifiable environmental factors associated with participation included parental stress, family activity and type of school.In clinical practice, environmental factors are to be assessed in a more systematic way in relation to current or future participation restrictions.
KW - attendance
KW - Cerebral palsy
KW - environmental factors
KW - ICF
KW - involvement
KW - participation
UR - http://www.scopus.com/inward/record.url?scp=85107365680&partnerID=8YFLogxK
U2 - 10.1080/09638288.2021.1923839
DO - 10.1080/09638288.2021.1923839
M3 - Review article
C2 - 34057002
SN - 0963-8288
VL - 44
SP - 1571
EP - 1582
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
IS - 9
ER -