TY - JOUR
T1 - Development and psychometric properties of the 'Assessment of Burden of Chronic Conditions (ABCC) tool' for people with chronic heart failure (CHF)
T2 - a mixed methods approach
AU - Keijsers, Lotte C.E.M.
AU - Peters, Loraine H.L.
AU - van Schayck, Onno C.P.
AU - Muris, Jean W.M.
AU - Boudewijns, Esther A.
AU - Claessens, Danny
AU - Willemsen, Robert T.A.
AU - Salomé, Philippe L.
AU - Boyne, Josiane J.J.
AU - Brunner-La Rocca, Hans Peter
AU - van Pol, Petra E.J.
AU - Jaarsma, Tiny
AU - Chavannes, Niels H.
AU - Bonten, Tobias N.
AU - Gidding-Slok, Annerika H.M.
N1 - Publisher Copyright:
© Author(s) (or their employer(s)) 2026. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ Group.. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: https://creativecommons.org/licenses/by-nc/4.0/.
PY - 2026/2/24
Y1 - 2026/2/24
N2 - OBJECTIVE: To develop a chronic heart failure (CHF) module for the Assessment of Burden of Chronic Conditions (ABCC) tool and evaluate its psychometric properties. DESIGN: Mixed methods study. SETTING: The study was conducted in the Netherlands. PARTICIPANTS: Healthcare providers (ie, general practitioners (GPs), practice nurses, cardiologists, heart failure nurse practitioners, heart failure specialist nurses) and patients with CHF were involved in the developmental phase. In the psychometric evaluation, patients with CHF were included. RESULTS: The ABCC-CHF module comprised 26 items across CHF-specific domains, accompanied by associated advice. It demonstrated high convergent validity with the Kansas City Cardiomyopathy Questionnaire (KCCQ) (97%) and successfully differentiated most known-groups. Internal consistency yielded a Cronbach's α of 0.92 for the total scale, while test-retest reliability showed an intraclass correlation coefficient (ICC) of 0.97. CONCLUSION: The CHF-specific module is developed and validated. It aims to integrate disease burden into routine healthcare, supporting person-centred care for people with CHF and multimorbidity.
AB - OBJECTIVE: To develop a chronic heart failure (CHF) module for the Assessment of Burden of Chronic Conditions (ABCC) tool and evaluate its psychometric properties. DESIGN: Mixed methods study. SETTING: The study was conducted in the Netherlands. PARTICIPANTS: Healthcare providers (ie, general practitioners (GPs), practice nurses, cardiologists, heart failure nurse practitioners, heart failure specialist nurses) and patients with CHF were involved in the developmental phase. In the psychometric evaluation, patients with CHF were included. RESULTS: The ABCC-CHF module comprised 26 items across CHF-specific domains, accompanied by associated advice. It demonstrated high convergent validity with the Kansas City Cardiomyopathy Questionnaire (KCCQ) (97%) and successfully differentiated most known-groups. Internal consistency yielded a Cronbach's α of 0.92 for the total scale, while test-retest reliability showed an intraclass correlation coefficient (ICC) of 0.97. CONCLUSION: The CHF-specific module is developed and validated. It aims to integrate disease burden into routine healthcare, supporting person-centred care for people with CHF and multimorbidity.
KW - chronic disease
KW - multiple chronic conditions
KW - patient-centered care
KW - primary health care
KW - quality of health care
UR - https://www.scopus.com/pages/publications/105031190872
U2 - 10.1136/fmch-2025-003781
DO - 10.1136/fmch-2025-003781
M3 - Article
C2 - 41735008
AN - SCOPUS:105031190872
SN - 2009-8774
VL - 14
JO - Family medicine and community health
JF - Family medicine and community health
IS - 1
M1 - e003781
ER -