TY - JOUR
T1 - Development and outcomes of a patient driven cystic fibrosis quality of care improvement project
AU - Noordhoek, Jacquelien J
AU - Jeyaratnam, Joshena
AU - Zomer, Domenique
AU - Gulmans, Vincent A M
AU - van der Ent, Cornelis K
AU - Heijerman, Harry G M
N1 - Funding Information:
The authors want to thank the patients and parents of patients who participated in the visitation committee of NCFS. We thank the CF centers for sending out questionnaires to all their patients and for welcoming the visitation committee at the CF team, management and to the Board of Directors. This research did not receive any specific grant from funding agencies in the public, commercial or not-for-profit sectors.
Publisher Copyright:
© 2022
PY - 2023/1
Y1 - 2023/1
N2 - The Dutch CF Foundation (NCFS) developed a quality improvement program, to assess and improve quality of care in all CF centers in The Netherlands. Criteria to assess quality of care from the patient perspective were defined, and quality of care was assessed by patients via online surveys and site visits. Recommendations were addressed to all centers to improve quality of care. Most recommendations were related to communicational issues. All centers were given the quality mark of the patient organisation, although two of them needed extra time to meet the lower limit of the core set of criteria. After two years, over 75 % of the recommendations given to the centers were fully or partly implemented, showing a high efficacy of the program.
AB - The Dutch CF Foundation (NCFS) developed a quality improvement program, to assess and improve quality of care in all CF centers in The Netherlands. Criteria to assess quality of care from the patient perspective were defined, and quality of care was assessed by patients via online surveys and site visits. Recommendations were addressed to all centers to improve quality of care. Most recommendations were related to communicational issues. All centers were given the quality mark of the patient organisation, although two of them needed extra time to meet the lower limit of the core set of criteria. After two years, over 75 % of the recommendations given to the centers were fully or partly implemented, showing a high efficacy of the program.
KW - Patient involvement quality mark
KW - Patient participation
KW - Patient perspective
KW - Quality of care
UR - http://www.scopus.com/inward/record.url?scp=85134763182&partnerID=8YFLogxK
U2 - 10.1016/j.jcf.2022.07.004
DO - 10.1016/j.jcf.2022.07.004
M3 - Article
C2 - 35842291
SN - 1569-1993
VL - 22
SP - 172
EP - 178
JO - Journal of Cystic Fibrosis
JF - Journal of Cystic Fibrosis
IS - 1
ER -