230th ENMC International Workshop:: Improving future assessment and research in IgM anti-MAG peripheral neuropathy: A consensus collaborative effort, Naarden, The Netherlands, 24-26 February 2017

Mariëlle H.J. Pruppers; Ingemar Merkies; Michael P.T. Lunn; Nicolette C. Notermans; Peter van den Bergh; Patricia Blomkwist-Markens; David Cornblath; Shirley D'Sa; Catharina Faber; Stephan Goedee; Ken Gorson; Jean Marc Léger; Richard Lewis; Michael Lunn; Lou Mazawey; Ingemar Merkies; Eduardo Nobile-Orazio; Nicolette C. Notermans; Luca Padua; Ludo van der Pol; Mariëlle H.J. Pruppers; Louis Querol; Andreas Steck; Hugh Willison

doi:10.1016/j.nmd.2017.08.001

230th ENMC International Workshop: Improving future assessment and research in IgM anti-MAG peripheral neuropathy: A consensus collaborative effort, Naarden, The Netherlands, 24-26 February 2017

Mariëlle H.J. Pruppers^*, Ingemar Merkies, Michael P.T. Lunn, Nicolette C. Notermans, Peter van den Bergh, Patricia Blomkwist-Markens, David Cornblath, Shirley D'Sa, Catharina Faber, Stephan Goedee, Ken Gorson, Jean Marc Léger, Richard Lewis, Michael Lunn, Lou Mazawey, Ingemar Merkies, Eduardo Nobile-Orazio, Nicolette C. Notermans, Luca Padua, Ludo van der PolMariëlle H.J. Pruppers, Louis Querol, Andreas Steck, Hugh Willison, ,

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Original language	English
Pages (from-to)	1065-1072
Number of pages	8
Journal	Neuromuscular Disorders
Volume	27
Issue number	11
DOIs	https://doi.org/10.1016/j.nmd.2017.08.001
Publication status	Published - Nov 2017

Keywords

Autoantibodies
Congresses as Topic
Consensus
Humans
Immunoglobulin M/metabolism
Myelin Basic Protein/immunology
Netherlands
Peripheral Nervous System Diseases/diagnosis

Access to Document

10.1016/j.nmd.2017.08.001

Cite this

Pruppers, M. H. J., Merkies, I., Lunn, M. P. T., Notermans, N. C., van den Bergh, P., Blomkwist-Markens, P., Cornblath, D., D'Sa, S., Faber, C., Goedee, S., Gorson, K., Léger, J. M., Lewis, R., Lunn, M., Mazawey, L., Merkies, I., Nobile-Orazio, E., Notermans, N. C., Padua, L. (2017). 230th ENMC International Workshop: Improving future assessment and research in IgM anti-MAG peripheral neuropathy: A consensus collaborative effort, Naarden, The Netherlands, 24-26 February 2017. Neuromuscular Disorders, 27(11), 1065-1072. https://doi.org/10.1016/j.nmd.2017.08.001

@article{05050c78b577478fa596972dc7241aea,

title = "230th ENMC International Workshop:: Improving future assessment and research in IgM anti-MAG peripheral neuropathy: A consensus collaborative effort, Naarden, The Netherlands, 24-26 February 2017",

keywords = "Autoantibodies, Congresses as Topic, Consensus, Humans, Immunoglobulin M/metabolism, Myelin Basic Protein/immunology, Netherlands, Peripheral Nervous System Diseases/diagnosis",

author = "Pruppers, {Mari{\"e}lle H.J.} and Ingemar Merkies and Lunn, {Michael P.T.} and Notermans, {Nicolette C.} and {van den Bergh}, Peter and Patricia Blomkwist-Markens and David Cornblath and Shirley D'Sa and Catharina Faber and Stephan Goedee and Ken Gorson and L{\'e}ger, {Jean Marc} and Richard Lewis and Michael Lunn and Lou Mazawey and Ingemar Merkies and Eduardo Nobile-Orazio and Notermans, {Nicolette C.} and Luca Padua and {van der Pol}, Ludo and Pruppers, {Mari{\"e}lle H.J.} and Louis Querol and Andreas Steck and Hugh Willison",

note = "Funding Information: The 230th European Neuromuscular Center (ENMC) international workshop occurred in Naarden, the Netherlands, from February 24th to 26th, 2017. The aims of the workshop were: 1) to create an IgM associated peripheral neuropathy study group and achieve consensus regarding the registration of patients with IgM associated peripheral neuropathy in a patient-based registry, 2) to improve future assessment of patients with IgM associated peripheral neuropathy from hematological markers to clinical trials, and 3) to discuss promising therapies for future clinical trials. Seventeen clinicians and researchers (sixteen neurologists and one hematologist) from nine countries (Belgium, Cura{\c c}ao, France, Italy, the Netherlands, Spain, Switzerland, the United Kingdom, and the United States of America) were present. A patient with IgM associated peripheral neuropathy, a representative of the GBS/CIDP Foundation International, and a PhD student, who received support from the ENMC Young Scientist Program, also attended. Funding Information: The pharmaceutical company GRIFOLS also contributed financially to this workshop with an unrestricted grant to the ENMC.",

year = "2017",

month = nov,

doi = "10.1016/j.nmd.2017.08.001",

language = "English",

volume = "27",

pages = "1065--1072",

journal = "Neuromuscular Disorders",

issn = "0960-8966",

publisher = "Elsevier Limited",

number = "11",

}

Pruppers, MHJ, Merkies, I, Lunn, MPT, Notermans, NC, van den Bergh, P, Blomkwist-Markens, P, Cornblath, D, D'Sa, S, Faber, C, Goedee, S, Gorson, K, Léger, JM, Lewis, R, Lunn, M, Mazawey, L, Merkies, I, Nobile-Orazio, E, Notermans, NC, Padua, L, van der Pol, L, Pruppers, MHJ, Querol, L, Steck, A, Willison, H 2017, '230th ENMC International Workshop: Improving future assessment and research in IgM anti-MAG peripheral neuropathy: A consensus collaborative effort, Naarden, The Netherlands, 24-26 February 2017', Neuromuscular Disorders, vol. 27, no. 11, pp. 1065-1072. https://doi.org/10.1016/j.nmd.2017.08.001

230th ENMC International Workshop: Improving future assessment and research in IgM anti-MAG peripheral neuropathy: A consensus collaborative effort, Naarden, The Netherlands, 24-26 February 2017. / Pruppers, Mariëlle H.J.; Merkies, Ingemar; Lunn, Michael P.T. et al.
In: Neuromuscular Disorders, Vol. 27, No. 11, 11.2017, p. 1065-1072.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - 230th ENMC International Workshop:

T2 - Improving future assessment and research in IgM anti-MAG peripheral neuropathy: A consensus collaborative effort, Naarden, The Netherlands, 24-26 February 2017

AU - Pruppers, Mariëlle H.J.

AU - Merkies, Ingemar

AU - Lunn, Michael P.T.

AU - Notermans, Nicolette C.

AU - van den Bergh, Peter

AU - Blomkwist-Markens, Patricia

AU - Cornblath, David

AU - D'Sa, Shirley

AU - Faber, Catharina

AU - Goedee, Stephan

AU - Gorson, Ken

AU - Léger, Jean Marc

AU - Lewis, Richard

AU - Lunn, Michael

AU - Mazawey, Lou

AU - Merkies, Ingemar

AU - Nobile-Orazio, Eduardo

AU - Notermans, Nicolette C.

AU - Padua, Luca

AU - van der Pol, Ludo

AU - Pruppers, Mariëlle H.J.

AU - Querol, Louis

AU - Steck, Andreas

AU - Willison, Hugh

N1 - Funding Information: The 230th European Neuromuscular Center (ENMC) international workshop occurred in Naarden, the Netherlands, from February 24th to 26th, 2017. The aims of the workshop were: 1) to create an IgM associated peripheral neuropathy study group and achieve consensus regarding the registration of patients with IgM associated peripheral neuropathy in a patient-based registry, 2) to improve future assessment of patients with IgM associated peripheral neuropathy from hematological markers to clinical trials, and 3) to discuss promising therapies for future clinical trials. Seventeen clinicians and researchers (sixteen neurologists and one hematologist) from nine countries (Belgium, Curaçao, France, Italy, the Netherlands, Spain, Switzerland, the United Kingdom, and the United States of America) were present. A patient with IgM associated peripheral neuropathy, a representative of the GBS/CIDP Foundation International, and a PhD student, who received support from the ENMC Young Scientist Program, also attended. Funding Information: The pharmaceutical company GRIFOLS also contributed financially to this workshop with an unrestricted grant to the ENMC.

PY - 2017/11

Y1 - 2017/11

KW - Autoantibodies

KW - Congresses as Topic

KW - Consensus

KW - Humans

KW - Immunoglobulin M/metabolism

KW - Myelin Basic Protein/immunology

KW - Netherlands

KW - Peripheral Nervous System Diseases/diagnosis

UR - http://www.scopus.com/inward/record.url?scp=85029523661&partnerID=8YFLogxK

U2 - 10.1016/j.nmd.2017.08.001

DO - 10.1016/j.nmd.2017.08.001

M3 - Article

C2 - 28927829

AN - SCOPUS:85029523661

SN - 0960-8966

VL - 27

SP - 1065

EP - 1072

JO - Neuromuscular Disorders

JF - Neuromuscular Disorders

IS - 11

ER -

Pruppers MHJ, Merkies I, Lunn MPT, Notermans NC, van den Bergh P, Blomkwist-Markens P et al. 230th ENMC International Workshop: Improving future assessment and research in IgM anti-MAG peripheral neuropathy: A consensus collaborative effort, Naarden, The Netherlands, 24-26 February 2017. Neuromuscular Disorders. 2017 Nov;27(11):1065-1072. doi: 10.1016/j.nmd.2017.08.001

230th ENMC International Workshop: Improving future assessment and research in IgM anti-MAG peripheral neuropathy: A consensus collaborative effort, Naarden, The Netherlands, 24-26 February 2017

Keywords

Access to Document

Other files and links

Cite this