Personal profile
Biography
Anouk de Sain is a PhD-student at the University Medical Center Utrecht, where she conducts research focused on patients with brain tumors. Her project in the Neurology and Neurosurgery department focuses on existential treatments for patients with brain tumors.
A central component of her research is the integration of patient involvement throughout the entire PhD project. By involving patients at various stages, Anouk seeks to ensure that their perspectives are heard and to assess whether the research aligns with their experiences and needs. This collaborative approach helps guide the research process and ensures that it remains relevant and meaningful for those directly impacted.
Through her work, Anouk aims to contribute to improving care and support for people living with brain tumors, addressing both their medical and existential needs.
Collaborations and top research areas from the last five years
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Reflections on Collaborations With Patient Partners in Neuro-Oncology Healthcare Research: Sharing Personal Experiences and Ethical Issues
Sain, A. M. D., Zomers, M. L., Ruis, C., Seute, T. & Janssens, A., 1 Jan 2025, In: International journal of qualitative methods. 24, 16094069251381708.Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile6 Downloads (Pure) -
Towards a definition of an existential approach in cancer patients: a co-produced scoping review
de Sain, A. M., Ruis, C., Zomers, M. L., Ten Hoor-Suykerbuyk, M. E. G., Kuunders, T., de Vos, F. Y. F. L., Janssens, A. & Seute, T., 9 Sept 2025, In: PLoS ONE. 20, 9 September, 15 p., e0330384.Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile39 Downloads (Pure) -
Sensory hypersensitivity after acquired brain injury: the patient perspective
de Sain, A. M., Pellikaan, L. W. M., van Voskuilen, J., Migdis, M., Sommers-Spijkerman, M. P. J., Visser-Meily, J. M. A. & Huenges Wajer, I. M. C., 2024, In: Disability and Rehabilitation. 46, 16, p. 3586-3593 8 p.Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile4 Downloads (Pure) -
A timeline of cognitive functioning in glioma patients who undergo awake brain tumor surgery: a response to Mahajan et al. and their letter to the editor
de Sain, A. M., van Zandvoort, M. J. E., Mantione, M. H. M., Huenges Wajer, I. M. C., Willems, P. W. A., Robe, P. A. & Ruis, C., Sept 2023, In: Acta Neurochirurgica. 165, 9, p. 2501-2502 2 p.Research output: Contribution to journal › Comment/Letter to the editor › Academic › peer-review
Open AccessFile -
A timeline of cognitive functioning in glioma patients who undergo awake brain tumor surgery
de Sain, A. M., Mantione, M. H. M., Wajer, I. M. C. H., van Zandvoort, M. J. E., Willems, P. W. A., Robe, P. A. & Ruis, C., Jun 2023, In: Acta Neurochirurgica. 165, 6, p. 1645-1653 9 p.Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile7 Downloads (Pure)