IWSA: Dutch Family Participates in Medical Center Grand Rounds

  • Marc Lilien (Contributor)

Activity: OtherTypes of Public engagement and outreach - Media article or participation

Description

The University Medical Center/WKZ Utrecht, Netherlands, recently conducted a virtual grands rounds and invited Jan Jongerius and Chantal Dupree to participate and provide a presentation. There were about 50 participants, including pediatricians, medical assistants in training, and medical students. Jan and Chantal, residents of Utrecht, are IWSA volunteers, and parents of seven-year-old Maelynn, and her older sister and brother. Maelynn's nephrologist, Dr M. Lilien, invited Jan and Chantal to speak about the role of the IWSA, the parent/patient organization supporting individuals with WAGR syndrome.
PeriodMar 2021
Degree of RecognitionInternational